FAMILIES from across the region have gathered together for the annual Williams Syndrome Foundation (WSF) day out at Rudyard Lake.
Many people, ranging from toddlers to adults, along with their families and friends, came from all over the Midlands to enjoy a picnic and some real fun on the lake, which was hosted by Ray Perry of the Rudyard Lake Trust.
Regional organisers Gareth and Liz Martin from Burton-on-Trent have organised the very popular day at Rudyard for a number of years with the support of Rudyard Sailability.
The person with the least distance to travel was seven-year-old Martha Price of Leek, who attended with her parents Darren and Deborah and her two-year-old brother Stanley.
Martha, who is a pupil at All Saints First School in Leek, was diagnosed with Williams Syndrome when she was just over two years old.
Martha’s mum, Deborah, said: “It's great to be able to talk to other parents, to find out how they deal with different medical and behavioural issues associated with Williams Syndrome and to share stories.
We always enjoy the day at Rudyard and it’s great to get out on the water with the help of Sailability and this year Ray Perry.” Dad Darren said that Martha loves the chance to meet up with friends from across the region.
He said: “Parents find the events fun too, as well as a useful opportunity to compare stories and seek advice from other people in a similar situation.
“We get together three or four times a year at different location, but Rudyard is special to us.
“Marta loves it and she enjoys living in Leek as everyone is so friendly in the town. She has made lots of friends at school and in the town.”
The Williams Syndrome Foundation is run for parents by parents. They have no paid fund-raisers and any money raised goes directly to research and welfare, apart from minimal administrative expenses.
Williams Syndrome is a rare disorder. Like the more common Down’s Syndrome it is caused by an abnormality in chromosomes, and shows a wide variation in ability from person to person, and people have a unique pattern of emotional, physical and mental strengths and weaknesses